I realize the top picture and the start of the post is going to seem scary, so I want to start off by saying Soren is doing great. We just had a little health issue that I wanted to document.
At Soren’s two year appointment on 9/27, they did a toe prick blood draw to check lead levels and for anemia. Soren’s levels for anemia were low twice, so they ordered a blood draw. We found out the following Monday that it was not the typical anemia- iron deficiency anemia. He had a low red blood cell count with perfect iron levels. Our pediatrician corresponded with pediatric hematology and ordered another set of labs for one week after the first. This confirmed his red blood cells were low and not increasing.
On 10/7, we were seen by pediatric hematology at Randell Children’s Hospital. They confirmed that the diagnosis is transient erythrocytopenia of childhood. The best word in this diagnosis is transient! Once it is caught, it takes 2-8 weeks to resolve. The doctor assured us this was a typical presentation- after a virus (can be mild- like his runny nose from starting day care) and is caught from a screening or from noticing the child is pale. The virus stops his bone marrow from making just red blood cells. The treatment is primarily watch and wait. We were scheduled for twice a week blood draws to check is hemoglobin levels along with his immature red blood cell count to see when he starts making his own red blood cells. The staff was amazing- caring for how to make the blood draws comfortable for him and answering all our questions.
On 10/15, we went in for a draw and his levels had dropped again. The doctor could hear a gallop in his heart and recommended a blood transfusion. Luckily, Paula was available and she came to get Sloane. Adam and I spent the day with Soren in the day treatment area of the hospital. They couldn’t get an IV started so we waited about 2 hours for the IV team. Once the IV was in, it took 3 hours to transfuse the blood. Soren was such a champ! We let him watch as much TV as he wanted- which was Secret Life of Pets and Zootopia, both animated animal movies that he loved. After the transfusion, his lips looked more pink and he had more energy.
One week later at a follow-up, he’s labs were better and we were cleared for two weeks for the next visit. On 11/5, his labs were awesome- hemaglobin higher than right after the transfusion and he was producing new blood cells at 2.5 times the average rate, meaning his body was making up the difference. And we are released- no more appointments needed! The doctor told me he was going to miss seeing Soren because he has such a sweet personality. It was nice to hear but I am glad we don’t have to go back!